Patient Support Groups

The Greenwood Genetic Center strives to help patients and their families connect with available resources and other families. We support several local and national parent organizations in numerous ways including coordinating meetings, providing meeting space, speaking, facilitating, sitting on boards, etc. Although there is no cure for most genetic conditions, our goal is to provide families with the education, knowledge, resources, and connections they need to enhance the quality of life for both the patient and the family as a whole.

Lucy's Story

Lucy's Story

When our daughter Lucy had a metabolic crisis at 7 days old, we were shocked and devastated to find out that she was born with a rare genetic disorder (MSUD). Her newborn screening results did not make it back in time to prevent the crisis, and no one at our local hospital was familiar with the disease. They did not know how to treat her. Calls were made to Greenwood Genetic Center to confirm her diagnosis...

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